This week has been eventful. As it turns out I have actually gone in and asked for a pay DECREASE. And a BIG one. My manager just looked blankly at me and said "well this is a first". I cannot cut down my hours anymore or I would not be able to hold benefits. It looks like we will not be getting a waiver in time before our Medicaid runs out Dec 31st. The only option:make less money. I suppose we could go with he option of just using the 100 shifts/ year our insurance gives. That's 2 shifts/week. I would not even be able to work let alone sleep with 2 shifts/week. It's not fair. Most importantly it would not be fair to Lauren or Alex. I cannot transport Lauren by myself. It is unsafe. I cannot be so tapped out by staying up most nights I would have nothing left to give. Nick has already told me if I wanted more help I should pay for it myself. He would "see what he could do to help" read:I'll help if it's convenient for me but because you have full custody you're on your own. The good news is I finally get to put my "I can live on almost nothing" skills to work. I'm sure we'll be just fine.
Alex is finally getting a top tooth! AND he got another ear infection with it! So this has been a fun week :/ Every day his crawling gets faster and he has finally mastered getting up the 2 steps from the family room into the kitchen. I was hoping that would take a bit longer! Of course Alex gave Lauren his cold and they are both on antibiotics. Lauren also had vent clinic this week. She did great! They dropped her breath rate from 26 to 22 so that she would breathe more on her own. I actually got to talk to the doctor on the phone because I work when there is "vent clinic". She actually said If Lauren stays healthy and continues on this path she could see starting trach trials in Jan or Feb!?!?! What?!? A trach trial is when she's off the vent usually for about 15 mins twice a day to see how she does. They would then SLOWLY move up the amount of time. Lauren being off the vent would make both out lives MUCH easier. We would only have to carry around oxygen tank (like we did for Alex). I cannot wait!
In other good news Alex has GAINED over a pound in the past 3 weeks! He is now 18 pounds 4 ounces! Lauren has LOST some weight and now weighs 24 pounds even. She is growing in length so her weigh is more appropriate. She is now in the 95% for weight and 65% for length. Last time she was WAY off the weight chart. Now if only she could give Alex 2 pounds things would be perfect! This video is when Cody goes CRAZY over this duck and it cracks up Alex...So I turn around and Alex is playing with the duck and LAUGHING at Cody!
He seems disappointed when the stick comes off!
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