This blog is to chronicle the ups and downs of life with one medically complex toddler, one angel baby and one high risk pregnancy. This is our journey.

Monday, October 31, 2011

Alexander and the terrible, horrible, no good, very bad week!

Alex didn't poop for 2 whole days...and when this happens the vomiting begins! He vomited up most feeds since Tuesday night. Despite my best efforts to clean him out, we ended up at the peds office on Friday afternoon with a X-ray to show us just how much poop he was full of! He FINALLY started pooping on Saturday and never stopped. Thank goodness. He now hasn't vomited in the past 24 hours but we are still not back up to his full feed volume...he was doing SO well before this! SO this week has been full of vomiting, waking up at night and finally diarrhea. Of course there was laundry, laundry and more laundry. I think we've seen the worst of it!

Sunday, October 23, 2011

Alex's cough if FINALLY gone!



After a month of coughing, 2 rounds of antibiotics and 17 days on steroids Alex is finally better! Yay! Thanks for all the prayers!
I have kept my stethoscope at home instead of work for the past few years. The other day Alex walked in the room and was wearing my stethoscope around his neck....just like his mommy does! It was so funny that I had to take a pic!
I was also going to post a pic from when Alex went to ZooBoo but he refused to put on his costume...so he went as himself...hopefully we'll have more luck this weekend because we have a Halloween event to go to every night!
In further news in the past month I have started working 2 days a week. I go into work only on Tuesdays and Thursdays and spend the rest of the time with Alex. This makes me feel like a stay-at-home mom who gets to go see her friends and use her mind 2 days a week and Alex gets to be with his BFF on those days. I get to spend most of my time with Alex but still get full benefits. Perfect.

Sunday, October 16, 2011

It's fun to go camping!




Alex went camping all day on Saturday with his boy cousins and lots of other children! He LOVED being outside for 12 hours straight! There was hiking, riding bikes and lots and lots of leaf throwing! Last year when we put Alex in a leaf pile he cried...he now LOVES it! No sensory issues for us!

Wednesday, October 12, 2011

2nd Annual Stucky's Farm with boy cousins!





I've blogged over and over again about how much Alex loves his boy cousins. We went to the pumpkin patch for the 2nd year with them and Alex had a blast! Last year we were all freezing and Alex was in a front carrier riding with me...This year we were all in shorts and t-shirts and Alex got to run around like crazy!

P.S. Alex got his haircut today by a *real* barber! His hair was out of control! Alex sat still inthe chair for over 15mins being a very good boy. Pics to follow in the next post!

Saturday, October 8, 2011

And Alex is sick again,,,

I figured I'd better update my blog or lose my audience! Alex has been sick again for the past 2 weeks. AT this point he is almost over it with only a snotty nose and a few coughs remain. In the past 2 months he has been on steroids for 17 days. This means there has been very little growth. I'm hoping to get a few good months of him off steroids for him to continue to grow! He still eats very little by mouth. Maybe 50 calories a day. We have started bolus feeding him in the past few weeks . Now, instead of his feeds taking 45mins they take 5! This also means that Alex does not have to sit in his highchair for all that time. All the by wants to do is be on the go! Alex went to his first friend's birthday party last weekend. We went to the mall to "build a bear" but he was WAY more interested in pushing a trash can around the mall! He loves to drag and push things across the floor. I was thinking about getting him a child's size toy stroller but it seems too feminine. None of the boy equivalents are very sturdy (ie lawn mower etc) Prayers needed for Alex to stop getting sick and start GROWING again!