Blessed.

I can remember about 9 months ago we had a meeting with all the people taking care of Lauren when she was getting ready to come home from the hospital. Everyone was there: PT, OT Vent doctor and her nurse, the nursing agency, social work etc, etc. We told them then that we had gotten in the wrong supplies for Lauren. We got in a part for her for when she was off the vent, not one for the ventilator. I remember the nurse saying "just keep it for when she's off the vent in the future". At that point, it seemed that was as far off as retirement. It seemed like we'd never get there. That was also a day where we discussed the "grim outlook" on Lauren. It was that day where they stated we might "see her die in front of us". It was that day we signed her DNR order.
She's come a LONG way from that day.
Last week We. Started. trach. trials.! This is where she's off the vent (but still on oxygen) so she does all the breathing on her own. We're starting at 15 mins twice a day and get to increase that by 15 mins every 5 days. We tore up that DNR order.
Lauren went upstairs for the first time. She's gone on her swing. She's a happy baby.
Lauren also had a appointment with a head doctor to look at her odd head shape. He said it was fine and should not cause brain problems in the future.
Lauren has also started taking more by mouth...in fact, she likes it WAY more than her brother does!